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Meeting Patients Where They Are: Liberating Clinical Trials Data Under the Cancer Moonshot

Cancer clinical trials are a critically important step on the pathway for new or improved treatments to make their way to patients in clinics and hospitals in towns and cities across the country. Patients and their loved ones are relying on these rigorous studies to determine whether promising new therapies and approaches might extend how long they live or improve their quality of life. For many years, a steady number of patients with cancer, approximately 5%, have participated in cancer clinical trials.

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Texting is Another Way to Make Mobile Moments

There are several things federal agencies need to think about in the mobile space. Is my website responsive, so that consumers can view it on any device (desktop/laptop, tablet, smartphone)? Do I have mobile apps that fill citizen needs? But does texting have a place in the U.S. government, as we strive to serve citizens where THEY are? Here are at least 9 factors you need to consider, according to GovDelivery, and Forrester analysts Art Schoeller and Thomas Husson:

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#NIHDigital Summit: Optimizing Digital to Reach Patients, Scientists, Clinicians and the Public

On October 19th, NIH brought together nearly 1,500 digital and health experts in person and via webcast. The event featured two keynote speakers and panels that showcased the unique perspectives of patients and caregivers, health communicators, health professionals and scientists. Susannah Fox, Chief Technology Officer of the U.S. Department of Health and Human Services (HHS), said we have entered the “third digital era.” First we connected documents, then we connected people.

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National Cancer Institute’s Smokefree Tools

Went a little too far with a bad habit? Do you or someone you love have difficulty putting down the cancer sticks? The National Cancer Institute has developed a triple threat to help kick this issue for good with an app, responsively-designed website and SMS program to help lead the way to a healthier life! The quitSTART app is free and available to everyone, though tailored to teens.

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Community Rock Star Round Up

Around this month’s Communities Theme, the DigitalGov team thought we’d round up your community rock stars. These are people in your communities who’ve gone above and beyond, who’ve contributed content, organized events, participated in developing toolkits and more. Let’s kick it off with the DigitalGov Summit Sounding Board. DigitalGov Summit Sounding Board For the 2015 DigitalGov Summit we pulled together innovators from across the federal government to guide the programming, promote the CrowdHall (and Summit overall) and help identify speakers.

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NCI: Reaching the Public via SMS to Change Behaviors

SMS messages are an excellent way to reach audiences. The National Cancer Institute (NCI) saw SMS messages as an opportunity to reach the public for the implementation of their Mobile Health Behavioral Intervention Programs. NCI has 15 SMS based programs, including HealthyYouTxt, a program designed to help users live a healthier lifestyle, and SmokeFreeTxt, a program designed to help users quit smoking. In this piece, we will talk specifically about the domestic version of the SmokeFreeTxt program, one of their most popular programs.

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Structured Content in Government: How HHS and NCI Are Getting Started

Metadata, tagging, content modeling … they’re not identical concepts, but they’re driven by the same basic principle: when you structure your digital information, it can be more easily searched, reused, connected, shared, and analyzed. If you’re new to structured content, where should you start? Ideally, your metadata strategy will be part of your overall content strategy. In practice, however, a lot depends on your agency’s culture, its technical resources, its existing practices, and the state of your content.

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DigitalGov Monthly Theme: How Data and Code Improve Government Services

Data and code are the foundation, building blocks, and cornerstone of government digital services. They are the keys that open the door to a better digital government future and are fundamental in making government more open. No matter who you are or where you work in the federal space, data and code enable your projects to meet real needs. This month we’re featuring articles around the theme of data and code.

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Persona Development Case Study: NCI and Spanish Language Outreach

Government websites need to address the needs of diverse audiences. Although translations are a first step towards engaging non-English speaking audiences, the intended audience may be alienated if information is not presented in a culturally relevant way. The National Cancer Institute (NCI) engaged in user experience research in order to better serve the U.S. Latino population. The research eventually led to the creation of Spanish language personas that NCI uses to design programs, products, and services that are culturally and linguistically appropriate.

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Trends On Tuesday: Responsive Web Design Implementation Happening Piecemeal

Approximately 18% of websites have implemented Responsive Web Design, according to the audit of websites Guy Podjarny completed in November. That’s more than 7% growth since his previous audit in January 2014. That number may seem low with the popularity of Responsive Web Design and the preference of mobile websites from users, but implementing responsive Web design is not as easy at it seems. In a report last year, Forrester found that “few organizations have the budget or risk appetite to ‘responsify’ all of their Web assets in one fell swoop.

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Open and Structured Content Models Workshop Recap

People consume government information in a variety of ways: through agency websites, of course, but increasingly through social media, search engines, and mobile apps, whether developed by agencies or third parties. To make sure the information is available seamlessly, accurately, and consistently from one setting to another, more and more agencies are exploring the use of content models. Content models create a structure to tag content in a standardized way and free it from any single format or destination, such as a Web page or PDF file.

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Customer Service Week 2014

They say that customer experience (CX) is the new marketing. People will tell their friends about their experience with your agency, and social media makes it easy to broadcast whether the experience was easy and enjoyable, or terrible. In 1992, Congress proclaimed the first full week in October as National Customer Service Week, and as we close out Customer Service Week 2014, here’s a recap of some great customer-service-related articles published on DigitalGov.

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National Cancer Institute Launches New User Experience Lab

Why does a Cancer institute need a User Experience lab? Simply put: To learn about their customers—people living with cancer and those who care about them—and build the best possible products with them in mind. “Cancer has a journey and we wanted to create a lab to capture the substance of that journey, understand what is needed and help design technologies to support people affected by cancer,” said Silvia Inéz Salazar, an Informatics Research Laboratory Manager at the National Cancer Institute (NCI).

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The Importance of Cross-Channel Customer Service—DigitalGov Summit Recap

During the DigitalGov Citizen Services Summit last Friday, customer service experts from across government came together on a panel to share what customer service means to them and their organization and specific ways they leverage it. The other panels were on performance analysis, public private partnerships, and inter-agency work. The panelists spoke about the strategies they use to integrate multi-channel customer service and the organizational barriers they’ve encountered. The panelists acknowledged that while the the government, as a whole, has room for improvement in providing truly integrated cross-channel customer service, leadership is beginning to recognize the importance and cost-savings, not to mention happy customers, it brings.

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Harnessing the Power of Many—DigitalGov Summit Recap

At the DigitalGov Citizen Services Summit last Friday, Jacob Parcell, Manager, Mobile Programs at the General Services Administration led a panel on the challenges and benefits of Inter-Agency work. The other panels were on performance analysis, customer service across channels, and public private partnerships. “The challenges are real,” said Parcell, who quoted President Obama’s famous salmon quandary: “The Interior Department is in charge of salmon while they’re in fresh water, but the Commerce Department handles them when they’re in saltwater,” Obama said.

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Turning Data Into Action—DigitalGov Summit Recap

At the DigitalGov Citizen Services Summit last Friday, more than 200 innovators across government and industry came together to share how digital services can improve citizen services and reduce cost. Four panels convened to share information on performance analysis, customer service across channels, public private partnerships and inter-agency work. We have a recap of the Performance Analysis Panel below. How do you show and track performance in 21st century digital government?

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Need Help Responding to Facebook & Twitter Questions? Use Your Contact Center Customer Service Experts

Government agencies are always looking for better ways to connect with their audiences while making more effective use of existing (or shrinking) resources. To that end, many agencies—including ours, the National Cancer Institute—have begun to use social media platforms to help serve the communications mission. As these tools have become more widely used, NCI’s Contact Center has become an essential partner in our social media efforts. For those who don’t know us, NCI is the largest of the 27 Institutes and Centers within the National Institutes of Health (NIH), which is part of the Department of Health and Human Services (DHHS).

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What Happened at Our User Experience Summit (with slides!)

We were hoping for 30, but we got more than 100 user experience professionals and novices on Jan 28, 2014, for our User Experience (UX) Summit at the General Services Administration. The event was sponsored by the User Experience Community of Practice and the DigitalGov User Experience Program. Here’s what we discussed: The Paperwork Reduction Act (PRA) Three speakers shed some light on the vitally important PRA process: Bridget C.

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Responsive Web Design Workshop: Why, How and What’s Next?

Responsive web design has been a beacon of light in the darkness of mobile strategy for many federal agencies. Many agencies have implemented it and many others are exploring this approach to Mobile Gov. There are still many other questions about responsive web design and it’s time to provide some illumination. Next Thursday, February 6, we are providing an opportunity for agencies to talk about these questions. At our Responsive Web Design Workshop: Why, How and What’s Next?

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Why NCI Moved to a Structured Content Model

Wikipedia says that structured content refers to information that’s been broken down and classified using metadata. It can also refer to information that’s been classified using XML or other standard or proprietary forms of metadata. The National Institutes of Health’s National Cancer Institute (NIH/NCI) move to structured content has allowed them to easily deliver their content anywhere, anytime, and on any device. The Challenge The National Cancer Institute (NCI) has a huge base of information on cancer treatments that is continually updated.

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NCI QuitPal App

NCI QuitPal is a free smartphone app developed by the National Cancer Institute of the National Institutes of Health to support smokers working to become smoke-free. This interactive app, available on the iOS platform, was developed using proven quit strategies and tools to help change behavior and assist people with giving up smoking. NCI QuitPal’s features include: Set a quit date, financial goals, and reminders Track daily smoking habits with an easy-to-use calendar See graphs tracking money saved and number of packs not smoked Receive health milestones and craving tips to stay motivated Connect with social networks to give milestone updates Create a video diary, and watch personalized video messages from loved ones Access NCI’s Cancer Information Service by toll-free phone line or live chat You can find more mobile products like NCI’s QuitPal on the USA.

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Taking Cancer.gov Mobile

_Mobile Gov Experiences are agency stories about creating anytime, anywhere, any device government services and info. This entry is a story shared by National Cancer Institute.__ _ The National Cancer Institute (NCI), the nation’s leading cancer research agency and part of the National Institutes of Health has a legislative mandate to collect, organize, and disseminate the results of cancer research to cancer patients and their friends and family, health professionals, and to the cancer research community at large.

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