Helping patients manage chronic pain has become an increasing challenge for health care providers, particularly in the face of an ongoing opioid epidemic in the United States. In response, the National Center for Complementary and Integrative Health (NCCIH) at the National Institutes of Health (NIH) has made funding research on integrative health approaches to pain management—exploring which approaches can be implemented as part of an overall treatment strategy—a research priority.
National Institutes Of Health
In April, Facebook made it possible for organizations to use chatbots to send and receive messages from users of Facebook Messenger. That’s a big deal. Facebook Messenger is now used by 900 million people every month. As the name implies, it’s a messaging platform that people use to send short messages to each other through the app. It’s the most popular messaging app in the U.S, and the second most popular of those apps worldwide, behind only WhatsApp (which Facebook also owns).
Cancer clinical trials are a critically important step on the pathway for new or improved treatments to make their way to patients in clinics and hospitals in towns and cities across the country. Patients and their loved ones are relying on these rigorous studies to determine whether promising new therapies and approaches might extend how long they live or improve their quality of life. For many years, a steady number of patients with cancer, approximately 5%, have participated in cancer clinical trials.
Summary: Significant strides in improving public access to scholarly publications and digital data help usher in an era of open science. This week marks the 8th annual Open Access Week, when individuals and organizations around the world celebrate the value of opening up online access to the results of scholarly research. It is an opportune time to highlight the considerable progress that Federal departments and agencies have made increasing public access to the results of Federally-supported scientific research and advancing the broader notion of open science.
As localities struggle with issues such as the Zika virus and the Opioid epidemic, gathering and disseminating trustworthy information can be daunting. But one group of Federal agencies and offices have come together to create a free and easy way to incorporate public health web content, images, video, microsites, data, and infographics into other sites, apps, and social media. Digital media syndication of science-based resources from the Department of Health and Human Services (HHS), Centers for Disease Control and Prevention (CDC), Food and Drug Administration (FDA), and the National Institutes of Health (NIH) can be combined with your ongoing activities and can help coordinate health messaging for maximum impact and reach.
Many content managers in the digital world understand the irrepressible desire to improve, fix, edit, add, and move things around. It’s our job, after all, to nurture the ongoing process of creating, updating, and testing. But, there are those sites or pages that never seem to make it to the high-priority list. For our Web team, this was our Center’s staff Intranet site. Our Web team recognized that the Intranet was in need of attention.
When some U.S. athletes at this month’s Olympic Games started showing up at their events with dark red circles on their torsos, sports commentators and the media hungrily sought answers to what the marks could be. In less than a day after the spots were…spotted, the story of the mysterious circles was becoming clearer: they were the result of cupping—a traditional Chinese medicine (TCM) practice that involves placing cups on the skin to create suction.
****We have previously written about microsites in the federal government. A microsite is a small collection of web pages—a subset of an organization’s full website. Partners can embed microsites that present curated information on a specific topic or campaign directly within their own websites. And perhaps best of all, microsites that are API-enabled are maintained and updated by the source organization so that when updates are made, those updates are automatically made on partner sites in real time.
In early April, the National Institutes of Health put out a call for images highlighting NIH-funded scientific research. The image call was posted on the NIH image gallery website and advertised through the NIH Public Information Officers (PIO) Network. The NIH Image Gallery, which averages 6,000 views per day, features free-to-use images for the general public, educational institutions, and news media. Through the sharing of images, NIH hopes to distribute educational information, increase public outreach, and expand awareness of the scientific discoveries and breakthroughs being made by NIH-funded research.
We have written about syndication and its successes before. The content offerings of the HHS Syndication Storefront have recently grown. The National Institute of Heart Lung and Blood Diseases (NHLBI), part of the National Institutes of Health (NIH), is the latest to add content into the system. Now you can directly syndicate content items such as the “DASH Eating Plan,” a “Description of High Blood Pressure,” to an article outlining “Coronary Heart Disease.
Structuring your content for portability across media platforms gives your agency the ability to not only place your message on other properties, but gives you the assurance that your information will always be up-to-date across multiple platforms. This ability is never more important than during an emergency, whether it is a natural disaster or a health crisis such as the Zika virus disease. Three members of the Open and Structured Content Working Group discussed all things structured content during the “Creating Portable Content with Structured Content Models” webinar earlier this year.
In the next couple of years as new social media platforms emerge and organizations open more accounts, when do you make the decision to shut an account down? When resources are limited, we must analyze the effectiveness of our social media programs and put our time and effort into the accounts that best serve our audiences. For NIDA, this meant merging our Drug Facts Facebook page into our main NIDA Facebook page, so we could better serve our social media followers and redirect our time into a more effective account.
Here at DigitalGov, we generally focus on federal governmental digital efforts within the U.S. It is where we live and operate, so it makes sense, but many governments across the world struggle with the same issues and leverage technology as a common solution. When I came across an article where Australia announced its “government as an API” platform was available, it seemed like a great opportunity to see how another country is tackling structured and open content.
You may have heard some chatter about syndication but thought to yourself—sounds good but does it really work? The answer is—Absolutely!! Here is your Proof NIH News in Health is a monthly newsletter that has recently been syndicated. Since syndication, the newsletter’s content can be found on multiple websites. These websites include state and local governments, non-profit groups and private companies. Here is an example of the newsletter on the NIH website.
Over the course of the last year, the National Library of Medicine (NLM) has sought to increase its use of usability testing to improve the user experience on our Web resources. To do this, we conducted hallway usability testing10-tips-for-creating-the-perfect-open-opportunity-task/) at the NIH Clinical Center on NLM’s site search feature. Our goal is to update the user interface and improve user satisfaction with results. We set out to learn the specific difficulties and successes users have with our search interface through user testing.
We are pleased to announce the beginnings of a new Syndication.Net/Sharepoint module for the Department of Health and Human Services (HHS) Syndication Storefront. The collaborative effort between HHS and National Institutes of Health’s (NIH), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) teams will eventually enable .NET content management system users to publish content directly in the HHS digital media syndication storefront. How did they do it, and what’s next?
I’ve been thinking a lot about Instagram lately. It’s pretty big, especially among the younger populations (AKA. Millennials). Actually, from what I can tell, it’s pretty big with lots of different age groups, genders, and ethnicities; and it’s growing every day. Full disclosure: I use Instagram in my personal life. I love it. Especially now that our phone cameras have improved beyond what most people can manage with a DSLR.
A recent DigitalGov webinar on syndicated content and the recent achievements of the Centers for Disease Control and Prevention helped open my eyes even wider to the possibilities of open and structured content. By offering critical health information via syndication, CDC and other Department of Health and Human Services agencies are helping resource-strapped local agencies share critical Web content with very little effort. APIs and Syndication Structured content and APIs form the core of any open content platform, whether it be syndication or other types of data sharing.
Looking for health or science related images? The National Institutes of Health (NIH) recently launched the NIH Image Gallery on Flickr. The Image Gallery offers a wide variety of scientific, biomedical and disease related imagery as well as photos of NIH leadership, labs, buildings and major historical events. Additionally, you can find NIH infographics, b-roll, and the latest research images. The Flickr site was developed as a means to distribute images to the press and public while ensuring proper license, permissions and copyright protections are documented.
On October 19th, NIH brought together nearly 1,500 digital and health experts in person and via webcast. The event featured two keynote speakers and panels that showcased the unique perspectives of patients and caregivers, health communicators, health professionals and scientists. Susannah Fox, Chief Technology Officer of the U.S. Department of Health and Human Services (HHS), said we have entered the “third digital era.” First we connected documents, then we connected people.
Federal agencies have used prize competitions and challenges to drive competition and spark innovation for nearly a decade. In September 2010, as part of President Obama’s Strategy for American Innovation [PDF], the Administration launched Challenge.gov, an online platform that enables federal agencies to engage civic innovators, entrepreneurs, and citizen scientists in prize competitions and challenges designed to help carry out agency missions and benefit society. The Administration is helping organize two events this week to celebrate the success of Challenge.
Leaders in the biomedical field will applaud a team of student researchers October 9 for developing a potentially lifesaving device in response to a competition published on Challenge.gov in March. The accolades come a day after the website, a no-cost platform for federal agencies to publish and administer incentivized competitions, celebrates its five-year anniversary. In its Design by Biomedical Undergraduate Teams (DEBUT) Challenge, the National Institutes of Health (NIH) called for students to submit solutions for unmet global health and clinical needs.
A long time ago in a federal agency building far, far away on F Street… the Great Federal Mobile Product Hunt launched at the DigitalGov Citizen Services Summit in Washington, DC. The campaign goal has not waivered from the initial launch because the USA.gov Mobile Apps Directory remains incomplete. The Directory is the authoritative source for federal mobile Web products, and federal agencies that do not have their apps registered here are losing out on valuable promotional opportunities on USA.
Memorandum: A Six Month Update on How We’ve Been Using Data, and How it Benefits All Americans To: The American People From: Dr. DJ Patil, U.S. Chief Data Scientist Date: August 19, 2015 In my last memorandum, I discussed the opportunity to unleash the power of data to benefit all Americans. Now that it’s been six months, I wanted to provide an update on my team’s progress. As I’ve had a chance to explore the different areas we’re working on across the government, it’s clear that this is the most data-driven Administration we’ve ever had.
Content syndication is an easy and cost-free way for you to add credible NIH health research information directly to your website. When NIH updates its content, those updates display immediately on your website through syndication, providing timely information for your audiences. Content syndication allows you to maintain the look and feel of your website while supplementing your information with critical, relevant content from NIH. Now you can pull the latest NIH grant content directly into your site.
While Facebook and Twitter are the most popular social media platforms (according to some rankings), your agency can and should evaluate the benefits of platforms like Pinterest, which have seen major growth in users and activity. In the last six months of 2014, Pinterest increased its membership by 57%, while Facebook and Twitter only grew by 6% and 18%, respectively. More than 60% of millennial moms use Pinterest, making it a platform perfect for agencies looking to communicate topics related to children and women’s health; DigitalGov previously discussed how the Food and Drug Administration’s Office of Women’s Health used Pinterest as part of an inter-agency health campaign.
There are multiple health-related Twitter chats every day of the week. There are chats focused on specific conditions, on the healthcare system, on treatments, on products and on practices. If your agency or organization is interested in leading a conversation in this sphere, it can be a challenge to have your voice heard and messages shared in an impactful way. On Wednesday, April 29, the National Center for Complementary and Integrative Health at the National Institutes of Health (NIH) held a Twitter chat on healthy aging, with a specific focus on mind and body approaches such as yoga, tai chi, and meditation.
When people hear about challenge competitions, they most often ask about the results. What worked and why did it work? Two great examples are featured on the White House Office of Science and Technology Policy site, which include the “needle in the haystack” solvers for a space mass competition and eleven entrepreneurial start-ups that are using breast cancer research. You’ll also read about how the Federal Community of Practice for Challenges and Prizes is creating a toolkit with user-centered design that ultimately will be developed into an interactive resource for government agencies to run incentive competitions, from conception through to implementation.
DigitalGov has seen posts from members of the community who land on opposite sides regarding social sharing buttons. There are those who find social sharing buttons useful (When Sharing Buttons Work and those who’ve found the opposite (To Use Social Sharing Buttons or Not. I’d argue the utility can be found in adjusting how, or more specifically where, you use them. But first… The Basics What are social sharing buttons?
Myth-busting isn’t just for television. And through a multi-faceted, tech-savvy campaign based on strategic partnerships, one federal office has found a winning strategy for combating misinformation. National Drug Facts Week (NDFW) is a health awareness week for teenagers, with the goal of debunking myths about drugs. The National Institute on Drug Abuse (NIDA), part of the National Institutes of Health, organizes the week and reaches teens in a relevant, engaging way.
Spread the Word about Clinical Trials! As we have recently seen with the Ebola outbreak, clinical trials are immensely important to medical advancement and treatment. The National Institutes of Health (NIH), in conjunction with the Centers for Disease Control and Prevention, has developed a new syndication tool to disseminate NIH Clinical Trials information. This effort will help recruit, educate and promote the efforts of NIH Clinical Trials. The content of the media player displays basic information on clinical trials, related videos and how to find a clinical trial to participate in.
3D printing has gone out of this world. Earlier this month, DigitalGov covered the NIH 3D Print Exchange, where 3D printing is supporting scientific learning and research. Today, we’re highlighting a project that is reaching brand new heights: NASA’s In-space Manufacturing Initiative. Self-Sufficiency in Space NASA is currently conducting 3D printing experiments aboard the International Space Station. In November, a printer faceplate was the first object successfully 3D printed in space.
In mobile app development, if you aren’t making it multilingual, you miss providing anytime, anywhere information and services to important mobile-only audiences. Regular DigitalGov readers know that we’ve touched on Hispanic mobile trends before, including the high rates of mobile usage among Hispanic millennials. Today, we’re highlighting five Spanish language apps from the Spanish Version of the USA.gov Federal Mobile Apps Directory hosted by Gobierno.USA.gov, Aplicaciones Móviles. Multilingual app development is one way federal agencies meet the diverse needs of the U.
The use of 3D printing is growing. From kayaks to pancakes to human and canine prosthetics, a diverse array of 3D printed products have been delivered. 3D printing has also been named one of the top technology trends in 2015 that organizations should incorporate into their strategic planning. In the federal space, 3D printing is evolving. Winners of the White House 3D ornament contest were announced last month. In January, we’re highlighting projects that show how 3D printing can support diverse federal initiatives, from scientific research to space exploration.
This year, innovative technologies like 3D printing are playing a role in creating a unique and interactive holiday experience at the White House. The halls of the White House are decked out with festive holiday décor and the White House Christmas tree stands tall in the Blue Room. In October, the White House announced the 3D Printed Ornament Challenge in partnership with the Smithsonian. Makers, innovators and students around the country, from New Hampshire and Texas to California and Michigan, submitted more than 300 creative, whimsical and beautiful winter-inspired designs.
The new second draft of the U.S. Public Participation Playbook incorporates changes that were proposed from nearly 100 suggestions submitted after the first week of public comment, with more improvements to come. We still need your contributions for this groundbreaking new collaborative resource to measurably improve our participatory public services across government, and would like to take this opportunity to share what we have learned so far.
Several federal agencies and offices have worked together to create a free and easy way for public health partners to incorporate our Web content, images, video, data, and infographics into other sites, apps, and social media. Through digital media syndication, the science-based resources of the Department of Health and Human Services (HHS), Centers for Disease Control and Prevention (CDC), Food and Drug Administration (FDA), and the National Institutes of Health (NIH) can be combined with your ongoing activities at the state and local levels, and can help coordinate health messaging for maximum impact and reach.
On September 6, 2013 at 11:27 p.m., EDT., viewers tuned in through the Internet to watch NASA launch its Lunar Atmosphere and Dust Environment Explorer (LADEE) spacecraft. As viewers logged onto the website, something unusual happened. For the first time, metrics indicated that NASA.gov’s mobile users outpaced their desktop users. 93 percent of their viewers were watching the launch from a mobile device. At the time, NASA Web managers were already considering changing their website.
Tuesday, October 7 at 2pm ET, the National Library of Medicine at the National Institutes of Health will host a Google Hangout to talk about developing with the API, data, and open source code from Pillbox. I (Pillbox project manager), Mark Silverberg of Social Health Insights (builder of super cool health apps), and Maya Uppaluru of ONC (leads their Innovation Engagement program) will go under the hood of Pillbox.
Content models provide an opportunity for agencies to structure, organize, distribute, and better publish information in multiple forms and on multiple platforms. Federal agencies discussed why content models are important for future-facing content in our What Structured Content Models Can Do For You Webinars in May and June. The point—with good content models, a single piece of Web content becomes an adaptive information asset that can be leveraged anytime, anywhere.
The National Institute of Biomedical Imaging and Bioengineering recently launched the “NIBIB Bionic Man,” an interactive Web tool that allows students and the public to learn about cutting-edge research in biotechnology. The bionic man features 14 technologies currently being developed by NIBIB-supported researchers. Examples include a powered prosthetic leg that helps users achieve a more natural gait, a wireless brain-computer interface that lets people with paralyzed legs and arms control computer devices or robotic limbs using only their thoughts, and a micro-patch that delivers vaccines painlessly and doesn’t need refrigeration.
Structured content and open content models can help you create content that is platform-agnostic, format-free, and device-independent. This was the theme of the “What Structured Content Can Do For You: Article Model” webinar last month. [youtube=http://www.youtube.com/watch?v=kG25vyQ5Jps&w=600] Using a content model is less about how you are crafting your message and more about how the internet is going to react to your content or how you can manipulate it, according to Holly Irving from the National Institutes of Health, Russell O’Neill from the General Services Administration, and Logan Powell from U.
At the DigitalGov Citizen Services Summit last Friday, more than 200 innovators across government and industry came together to share how digital services can improve citizen services and reduce cost. Four panels convened to share information on performance analysis, customer service across channels, public private partnerships and inter-agency work. We have a recap of the Performance Analysis Panel below. How do you show and track performance in 21st century digital government?
Our fabulous colleague Jeanne Holm is ready for the #hackforchange events this weekend and summarized some tips, notes and links to resources on Data.gov. Great things will happen this weekend! Remember, if you hear about great uses of government data, let everyone know by tweeting #hackforchange or mention @usdatagov. The Data.gov team is organizing a webinar in a week, showcasing some of the best outcomes and hosting lightning talks by the developers and designers.
The Food and Drug Administration collects drug labeling information for human prescription, over-the-counter, homeopathic, and veterinary products through a special markup language called “Structured Product Labeling” (SPL). The database created from the SPL submissions is a treasure trove of health information that is valuable to pharmacists, doctors, and the ordinary health consumer. The problem is that data is hard for developers to access and process. Until recently, when the National Library of Medicine released open source code for “Pillbox.
Last week, we discussed National Women’s Health Week (NWHW) as an example of a coordinated campaign that used digital tools. Social media has made building campaigns easier by enabling us to quickly reach out to groups with similar missions as well as to engage with citizens. Here are the highlights from the webinar and some initial metrics, and in case you missed it, you can replay the webinar here.
You should be on this list—the current federal government participants in the National Day of Civic Hacking. There are 15 agencies participating in the event, primarily in and around the Washington, D.C., area. This is a fantastic compilation of what agencies are doing, but it is not enough. We need more widespread participation across the country. If your office has a regional presence and has data or ideas for technical and design projects they’d like to contribute, this is a prime opportunity to dip in and see what it is like to work with people outside of government.
Smartphones, tablets, Twitter, Facebook, Instagram, not to mention your agency’s desktop website, are all clamoring for information, but sliced and diced in different ways. How can you make your content adaptive for efficient delivery to all of these mediums? Structured content and open content models can help you create content that is platform-agnostic, format-free, and device-independent. We’ve created two open and structured content models that we want you to use and adapt.
Need Help Responding to Facebook & Twitter Questions? Use Your Contact Center Customer Service Experts
Government agencies are always looking for better ways to connect with their audiences while making more effective use of existing (or shrinking) resources. To that end, many agencies—including ours, the National Cancer Institute—have begun to use social media platforms to help serve the communications mission. As these tools have become more widely used, NCI’s Contact Center has become an essential partner in our social media efforts. For those who don’t know us, NCI is the largest of the 27 Institutes and Centers within the National Institutes of Health (NIH), which is part of the Department of Health and Human Services (DHHS).
On this Earth Day, federal social media managers are hard at work, sharing and promoting what government and citizens can do to protect the environment. We’ve compiled a sample of the activities that also show how different agencies are using different social media tools in support of a common goal. The United States Environmental Protection Agency (EPA) has been leading the way all month, hosting Twitter chats every Tuesday at 2pm EDT, with the hashtag #ActOnClimate.
Wikipedia says that structured content refers to information that’s been broken down and classified using metadata. It can also refer to information that’s been classified using XML or other standard or proprietary forms of metadata. The National Institutes of Health’s National Cancer Institute (NIH/NCI) move to structured content has allowed them to easily deliver their content anywhere, anytime, and on any device. The Challenge The National Cancer Institute (NCI) has a huge base of information on cancer treatments that is continually updated.
With mobile use growing exponentially and federal agencies implementing customer-facing mobile services for the Digital Government Strategy, we decided to put together a Mobile Gov resource “cheat sheet” with concepts and information we think will be helpful for agencies implementing Mobile Gov in 2013. Here’s what Mobile Gov implementers need to know! APIs Application Programming Interfaces (APIs) have been called the “secret sauce” for digital services. They help open information (content and data) so it can be reused inside and outside of government.
You need resources, and we are here to help with an excellent new webinar series to jump start your agency’s digital gov efforts. Do you think “mobile first”? A “mobile first” approach is where new websites and applications are designed for mobile devices first, instead of designed for the traditional desktop machines. Description In this second webinar in our mobile webinar series, you’ll learn how to get your agency thinking “mobile first.